JOB OPPORTUNITY: Part-time Program Coordinator

Posted By on August 23rd, 2016 at 4:03 pm | 0 comments.

PBCC LOGOOrganization Background

The PA Breast Cancer Coalition (PBCC) represents, supports and serves breast cancer survivors and their families in Pennsylvania through educational programming, legislative advocacy and breast cancer research grants. The PBCC is a statewide organization with a board of directors and a network of volunteers across the state. The PBCC exists to help the 13,500 women in this state who will be diagnosed with breast cancer this year, to support the families of the 2,200 women who will die from it and to serve as a resource for the hundreds of thousands more women currently living with the disease.

Position Summary

The PA Breast Cancer Coalition is seeking a highly motivated, experienced, energetic professional with excellent communication skills to work part-time in the Lebanon, PA office.  This position will require some travel across Pennsylvania to committee meetings and will include some night/weekend work.

The Program Coordinator will manage the PBCC’s traveling photo exhibit, “67 Women, 67 Counties: Facing Breast Cancer in PA” and will also assist other staff members on programs such as the PBCC Community Advocacy and Research Education for Students (CARES) program, and our Research Grant publicity events.  We’re seeking a people person, someone who can work with different personality types and is serious about getting the job done. We need someone who’s reliable, focused, friendly, and detail-oriented.

The ideal candidate should possess a minimum of two years’ experience handling all aspects of event and program planning, be proficient in MS Office and the Adobe Design Suite of programs, have strong oral/written communication skills and work well in a fast-paced team environment.

Key Job Responsibilities

  • Oversee all details of the PBCC’s travelling photo exhibit: “67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania”
  • Assist with the PBCC’s CARES program and Research Grant publicity events
  • Develop new relationships,  additional event sponsorships and/or and grassroots partner events by growing program related contacts
  • Write event recaps for PBCC publications as needed
  • Travel, as needed, to provide oversight and assistance for programs and events off-site

Requirements/Qualifications

  • Excellent communication skills
  • Highly organized with the ability to multi-task and work productively in a team setting
  • Willingness to travel and attend occasional evening and weekend events
  • Comfort using Microsoft Office suite, Adobe InDesign and Photoshop
  • At least 2 years’ experience coordinating special events

Job Details

This position has flexible hours and is for 16-24 hours per week. The pay is $15 an hour.   This is a grant funded position funded through June 2017 with an excellent possibility of renewal. 

Please submit the following to Jobs@PABreastCancer.org with “Program Coordinator” in the subject line.

–        Cover letter
–        Resume

No phone calls please.  The PA Breast Cancer Coalition is an Equal Opportunity Employer.

Conference Scholarships and Travel Grants Available through Cary Massa Fund

Posted By on August 16th, 2016 at 1:47 pm | 0 comments.

Cary Massa portraitThe PA Breast Cancer Coalition Conference is educational, inspirational and FUN! Make a day of it! Want to attend, but can’t afford the registration fee? Scholarships are available through the Cary Massa Memorial Scholarship Fund.

The Cary Massa Memorial Scholarship Fund has allowed hundreds of women to attend the Conference, free of charge.

Cary was a wife, a mother, a friend, a fighter and a shining light to those around her. She passed away from breast cancer in 2006, but Cary’s husband, Robert, her family, friends and fellow members of the ABCs Support Group have chosen to preserve her memory through the fund. To learn more about Cary’s legacy, click here to watch the video.

Click here to apply for a scholarship through the Cary Massa Fund

New for 2016: Caregivers are eligible for a special registration fee of $25. Nurses, social workers and radiologic techs who attend will receive 3 FREE continuing education hours!

This activity has been submitted to Pennsylvania State Nurses Association for approval to award contact hours. Pennsylvania State Nurses Association is accredited as an approver of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

This educational activity has been submitted to NASW-PA for CE approval
This educational activity has been submitted to the ASRT for CE approval

 

First in the Nation: Governor Wolf Signs Statement Covering 3D Mammograms in PA

Posted By on August 16th, 2016 at 10:15 am | 0 comments.

Pat and Governor Wolf rounded cornersOn October 5, 2015, Governor Tom Wolf made Pennsylvania the first state in the nation to require insurance coverage of 3D screening mammograms for women insured under PA law. First Lady Frances Wolf made the historic announcement almost one year ago at the PA Breast Cancer Coalition Conference in Harrisburg. Now, 3D screenings mammograms are covered at no additional cost to insured women and women covered through Medicaid.

To mark the 1st anniversary of the groundbreaking news, the PBCC is informing women across the state about how to access 3D screening mammograms in their area. We’ve launched a 1-question survey of all mammography centers. At our Conference October 10, we will release a list of the Pennsylvania 3D mammography centers. The list will also be published on our website, in our Frontline newsletter and right here in PinkLink.

Do you work for a mammography center that offers 3D screening mammograms? Don’t miss the list! Take the survey now and make sure your facility is listed as a 3D mammography provider.

Take the survey button

PBCC Photo Exhibit Participant Stresses Importance of Early Detection, Screenings

Posted By on August 16th, 2016 at 10:07 am | 0 comments.

Dorothy Klyap for PL

Dorothy Klyap, Indiana County

I heard so many horror stories but my story was nothing like that. My regular yearly mammogram found my breast cancer in May 2010 and no one ever wants to hear those words, “you have breast cancer.” What is amazing now is that when I look back on it, it has taught me so much.

After chemo treatment, I couldn’t eat for the first two days but I never got sick. I must really have an angel on my shoulder. My husband Jim attended every one of my treatments with me. Our son who lives in Montana flew home to be with me through my first chemo treatment. Our daughter lives nearby and she’s the one who always pushed me to get mammograms, and she’s the one who brought me meals.

I first learned about the PBCC through my nurse navigator. Since then I was honored to be asked to represent Indiana County in the PBCC’s traveling photo exhibit, along with Maria Swinconis and Mary Waugaman. I was a guest at the 2015 conference and heard the announcement that 3D mammograms are now covered by insurance, and I called to tell my daughter that news right away. Indiana Hospital just got 3D mammograms and I said, “Honey, go get that mammogram!” I learned so much at that conference. There were things I forgot to ask my doctor and I was able to bring home so much medical information.

We live in a beautiful home on 40 acres the woods. There is a property connected to ours with a house that had been empty for over seven years. Sometimes during treatment, I’d go back there and sit on the rickety steps where my husband couldn’t see me crying. I dreamed of owning that house and now I do! I put every bit of paint and wallpaper on it myself. My husband wanted to name it Dorothy’s Dream House but I’m calling it B & J Retreat after my daughter Bridget and son Jimmy. We rent it out by the night or by the week. My beautician is planning to hold meditation classes there.

My favorite things to do are sewing and gardening. I just bought fabric to make drapes for my living room. I have vegetables and flowers in my garden and everyone laughs at this but I love getting on my tractor and mowing the grass. That’s my meditation time. Two weeks from now I’m having knee surgery. The surgeon wanted to have a physical therapist work with me until he heard that my husband and I cut down two big trees on Saturday. He said, “You do enough. You won’t need a therapist.” I don’t stop.

Governor Wolf Signs Bill Covering Oral Cancer Treatment for PA Patients

Posted By on July 14th, 2016 at 9:43 am | 0 comments.
PBCC Director of Patient Advocacy Dolores Magro spoke with oral chemo parity bill author Rep. Matt Baker at a recent press conference held by the PA Cancer Treatment Fairness Coalition at the State Capitol.

PBCC Director of Patient Advocacy Dolores Magro spoke with oral chemo parity bill author Rep. Matt Baker at a recent press conference held by the PA Cancer Treatment Fairness Coalition at the State Capitol.

Governor Tom Wolf just signed a bill that helps with the high costs of oral cancer treatment for patients in Pennsylvania. Rep. Matt Baker’s House Bill 60 specifically addresses the cost disparity between intravenous and oral cancer treatments. Previously, oral cancer medication was covered under an insurer’s pharmacy (drug) benefit, often requiring patients to pay thousands of dollars per month, out-of-pocket. Now, oral treatments will be covered the same as intravenous medications on an insurer’s medical benefit, which means patients will only be required to make a fixed co-payment.

Rep. Baker, a 2015 PBCC Pink Ribbon Awardee, authored the oral cancer treatment parity bill and has been working to pass the legislation for years. The following legislators were also instrumental in the passage of the bill: Sen. Tommy Tomlinson, Senate sponsor of oral cancer treatment parity legislation, Sen. Pat Vance, chair, Senate Health and Public Welfare Committee, Sen. Don White, chair, Senate Banking and Insurance Committee and Rep. Kerry Benninghoff, chair, House Cancer Caucus.
“This legislation was a long time in coming. With more than 80,000 people per year receiving a cancer diagnosis in Pennsylvania, we needed to step up and make sure everyone has access to the best and most cutting-edge cancer treatments”
Rep Matt Baker, (R-Tioga/Bradford/Potter)
Author of Act 37, oral cancer treatment parity law

“Oral cancer treatment is the wave of the future,” said PBCC President Pat Halpin-Murphy. “We commend Governor Wolf for signing this law and we congratulate Rep. Baker for his commitment to the thousands of cancer patients this will impact across Pennsylvania. This will truly save lives.”

According to Rep. Baker, Pennsylvania now joins more than 40 states and Washington, D.C., in having enacted legislation to control out-of-pocket oral cancer treatment costs for patients.

Connect and Learn: Attend the 2016 PBCC Conference!

Posted By on July 14th, 2016 at 9:26 am | 0 comments.

patheadshotforplby Pat Halpin-Murphy, President and Founder

The people you meet, the relationships you build and the knowledge you gain from the PA Breast Cancer Coalition Conference make it a truly one-of-a-kind experience. Want to be a part of it? We invite you to join us Monday, October 10, 2016 at the Hilton Harrisburg for a day of connection, education and fun.

This year’s workshops will cover everything from survivorship to lymphedema to palliative care to yoga, meditation and more. Are you caring for a loved one with breast cancer? New for 2016: The PBCC offers a special caregiver registration for $25. Simply list the survivor you’ll be joining and attend at the discounted rate. Thanks to the generosity of our incredible Grassroots Partners, we are able to offer 3 FREE Continuing Education credits for nurses, social workers and radiologic technologists.

Plus, don’t forget to mark your calendars for our free Pink Party Sunday, October 9 at 6pm. Kick off the Conference in style as we honor Grassroots Partners and breast cancer survivors!

Pull quote for pres corner

To help you learn more about what to expect at this year’s PBCC Conference, click on the short video below.

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LOL! Laughter is Best Medicine for Dauphin County Survivor

Posted By on July 14th, 2016 at 9:26 am | 0 comments.

Susan Blackstock, Dauphin County

Susan Blackstock Survivor Spotlight for PL

Susan’s workplace, Amerihealth Caritas, hosts a Pink Week which has raised tens of thousands of dollars for the PBCC’s programs and services!

My beautiful sister Janet was a hospice nurse for many years.  She would tell her patients that her sister Susan was the luckiest person she had ever met. That’s because I was doing the unhealthiest thing a person can do. I was smoking when I discovered a lump the size of a baby pea in my breast.

In March 2007 I learned that I had breast cancer.  I might have had a clue about that since it runs in my family, but I truly never thought I’d get it.  My sister Karen says I live with the pixies and that I completely deny anything unpleasant.  That true, but I wasn’t so much in denial that I didn’t get regular mammograms. For years I said it will skip us, my sisters and girl cousins and me, and by the time my nieces get older they will have cured it, but that didn’t happen.  So I learned that I would be living without the two things that entered a room before me since the age of 15.  They were big, and heavy, and incredibly squishy soft; I loved them.  Unfortunately, the girls had to go. I remember standing in the shower the morning of my surgery and washing them for the last time, and I could not visualize what it would be like without them.

I thought I would never leave the house without the fake ones in.  I learned that was wrong too.  Those jokers itch and when you’re healing you don’t want something itchy next to your skin.  So I started going out without them. Suddenly my belly seemed enormous whereas before it, it had provided a kind of resting place for my boobies…I told you they were heavy.  I also learned something really awesome in the process, not wearing a bra is GREAT!!!  Seriously, it rocks.

I learned during that first year that I would assess my life in terms of quality and not longevity and therefore I would not take chemotherapy.  This decision confused and even angered people who love me, but it’s my life and I need to live it as I see fit. It was not because I did not want to lose my hair.  It was because chemo is a horrible thing to go through, and I simply did not want to do it if I did not absolutely have to.

I learned that beauty can be painful with the first step of my reconstruction.  When the expanders went in and I could not roll over to get out of bed, I was freaking out because it hurt like a beast.  I learned that when you cough or sneeze after a procedure like this, you make sure you fold your arms over your chest, covering your new breasts.

I learned that I did not want to be seen as a victim to this thing that invaded my fairy-like existence.  So I chose to ignore the unpleasantness and plow forward.  I talked openly about my situation so others would feel at ease.  If I felt weird about it, they might also.  I asked people if they wanted to feel my chest once the expanders were in; men and women both. I never asked why me, because I already knew the answer.  Why not you Susie baby, why not you?  God does not make mistakes, and bad stuff happens all of the time to people who don’t deserve it.  That is life.  No one’s life is pain free.  Maybe I got it because I had the strength and support to handle it.  God knows why and I don’t need the details.  Suffice it to say, I get a new rack out of the deal that will never sag. So let’s call it a day.

After a while it was my turn to give back.  So I started with some wonderful people in my company, Ameriheath Caritas to raise money for the PBCC.  Every year in October we hold a week of activities called Pink Week to raise awareness and funds for the PBCC. People are very generous and we raise over $5,000 each year! It is my great pleasure to do so because the PBCC is committed to finding a cure.

The most important thing I learned is that I was loved.  I knew I was loved before this happened, but that year all of the love I had in my life leapt on me, threw me down on the bed, and kissed me all over my face. People called me, cooked me a freezer full of meals, sent cards, flowers, and gifts.  They cleaned my house and did my laundry.  They held my hand and changed my dressings.  They kept my dog while I recovered and gave me sick time so I would still get paid.  They laughed with me and held me and told me I was beautiful. You can have a wonderful life after cancer because, if you’re like me, you learn to say what you mean, to do what you say and to know that you need to do what you really want to because life is not a do over, this is it.  You make the most you can out of it while you can.

VP’s Moonshot Summit Focuses on Future of Cancer Prevention, Treatment

Posted By on July 14th, 2016 at 9:25 am | 0 comments.

Moonshot Summit for PL roundedPBCC President and Founder Pat Halpin-Murphy was among doctors, patients and advocates invited to the Cancer Moonshot Summit at Fox Chase Cancer Center on June 29. The national effort spearheaded by Vice President Joe Biden aims to advance cancer research, increase patient access to treatment and to support patients across the country.

The ultimate goal of the Cancer Moonshot is to double the rate of progress toward a cure for cancer. The PA Breast Cancer Coalition was honored to be part of this historic event!

Click here to watch Vice President Joe Biden’s remarks from the summit.

Click here to watch the recording of Fox Chase’s moonshot summit.