Archive for the ‘Pink Link’ Category

Breast Implants Linked to Rare Cancer Are Recalled Worldwide – The New York Times

Posted By on July 31st, 2019 at 9:44 am | 0 comments.

Meet the Awardee: 2019 Pink Ribbon

Posted By on July 11th, 2019 at 4:18 pm | 0 comments.

Robin Shine-Maddox, Pink Ribbon Awardee

This year, the PA Breast Cancer Coalition honors breast cancer survivor and advocate, Robin Shine-Maddox, with our Pink Ribbon Award. Founder and President of Celebrating Sisterhood and Chief Networking Officer of SHINE CONNECTIONS LLC., Robin has been a fearless leader and motivator in the fight against breast cancer in the Philadelphia area. Since being diagnosed at age 55, Robin, who also serves as Constituent Activity Liaison for State Senator Vincent Hughes, has been a voice of strength and survivorship within her community. In addition to her public work to raise breast cancer awareness, promote early detection practices and help other women find the resources they need, Robin’s message to survivors is one of solidarity, hope and faith.

Meet the Awardee: 2019 Potamkin Prize

Posted By on July 11th, 2019 at 4:13 pm | 0 comments.

Dr. Gabriel N. Hortobagyi, Potamkin Prize Winner

2019 Potamkin Prize Winner, Dr. Gabriel N. Hortobagyi, MD, FACP, is a longtime trailblazer in the field of breast cancer research and oncology. As Professor of Medicine in the Department of Breast Medical Oncology at the University of Texas M. D. Anderson Cancer Center, Hortobagyi’s major area of focus is the biology and treatment of breast cancer and the development of new agents and management strategies for the disease. He  has guest edited numerous issues of Seminars in Oncology, Seminars if Breast Disease, Oncology, and The Cancer Bulletin. For over three decades, Hortobagyi has dedicated his life’s work to improving the lives of breast cancer patients. He has focused overcoming resistance to endocrine therapy by developing rational combinations of endocrine therapies with targeted therapies. His work has changed the standard of care in managing metastatic, hormone receptor-positive breast cancer.groundbreaking research and ultimately, finding a cure.

 

Palliative Care: The Facts on this Specialty Supportive Service

Posted By on July 1st, 2019 at 11:06 am | 0 comments.

 

 

David R. Wenner, DO FAAFP

Chief Medical Officer, Hospice of Central PA

 

Palliative care is a medical specialty that focuses on relief of physical, emotional, physiological and spiritual symptoms related to chronic and/or serious illness. Often, symptoms such as pain, anxiety, insomnia, shortness of breath, fatigue, nausea, and appetite loss can significantly impact a patient’s quality of life. Palliative medicine specialists aim to reduce the burden of these symptoms by focusing on individualized treatment strategies, addressing the “Whole Patient” and not just the disease process.

 

Palliative care includes a specialized team of physicians, nurses, social workers, and chaplains. We work alongside the patient, family, and other medical providers as a team. Specialists in palliative care see patients in hospitals, in their offices, in long term care facilitates, as well as in their homes.

Palliative care is NOT the same as hospice care. Palliative care may be provided at any time during a person’s illness. Often, palliative care is offered to patients at the same time they are receiving potentially life prolonging or curative treatments. Receiving palliative care does not prevent the patient from pursuing other services, treatments, or procedures.

Another goal of palliative care is to help patients and families better understand their illness in order to assist with complex medical decision making. We strive for a patient’s values and goals to be heard and appreciated so that they can make the best decision possible for their care.

A referral to a Palliative Medicine physician does not mean your medical provider is “giving up hope.” Often, patients who receive palliative care early on in their disease process benefit from superior symptom management, greater emotional support, and overall improved quality of life.

 

Palliative ( pal-ee-uh-tiv)

Adj. intended to alleviate a problem. Synonyms: soothing, alleviating, calmative.

 

 

AARP’s CARE Act Provides Support to Caregivers

Posted By on June 28th, 2019 at 10:52 am | 0 comments.

 

More than 1.6 million Pennsylvanians care for older parents, spouses or other loved ones, helping them to live independently at home. These family caregivers have a huge responsibility, and PA now has a law that will make life a little bit easier for them.

The CARE (Caregiver Advise, Record, Enable) Act helps family caregivers when their loved ones go into the hospital and as they transition home.

The CARE Act requires hospitals to:

  • Provide your loved one the opportunity to designate a family caregiver.
  • Inform you when your loved one is to be discharged to another facility or back home.
  • Give you an explanation and demonstration of the medical tasks you will need to perform at home.

“AARP is here in PA fighting for older Americans and their families said Joanne Grossi, PA State President AARP and Executive Vice President, PA Breast Cancer Coalition.  Because of the work of AARP, the CARE Act is now a reality for all Pennsylvanians. This crucial law gives essential information and support to caregivers, including families who are facing a breast cancer diagnosis and living with metastatic disease.  Caregiving is a big responsibility, and caregivers should have the important information that they need to safely care for their loved ones at home.”

 

 

AARP Pennsylvania led the fight in PA for the CARE Act. To see the full release please click here:  https://www.prnewswire.com/news-releases/pennsylvanias-care-act-takes-effect-april-20-300441932.html.

Research Grant Reviewers Needed!

Posted By on April 24th, 2019 at 9:27 am | 0 comments.

 

PA Breast Cancer Coalition (PBCC) is in need of individuals to serve this year on our panel as Scientific Research Reviewers and Consumer/Lay Reviewers.

Each Scientific Reviewer will be assigned a designated number of grants/proposals to review and will write short critiques on the following:

  • Scientific Relevance
  • Impact
  • Innovation
  • Research Strategy
  • Research Environment
  • Feasibility and Timeline
  • Budget
  • Principal Investigator and Personnel

Each Consumer/Lay Reviewer will be assigned a designated number of grants/proposals to review and will write a short critique on the following:

  • Impact

Consumer/Lay Reviewers are required to read the full application and are encouraged to comment on all criteria if you feel you have the knowledge and feel comfortable in doing so.

Each assigned reviewer will provide their critique(s) focusing on major, score driving strengths and weaknesses.

Once your willingness and availability to serve on the Review Committee is confirmed, you will be emailed a Conflict of Interest (COI) that will need to be completed and emailed back to the PBCC. An email address will be provided to you.

You will also receive the Reviewer Manual/Guidelines to review.  Please read and become familiar with the material since this is the information you will need to begin and complete your review process for the Grant/Proposal Program.

Grants/Proposals will be mailed to you around July 6, 2019. Your score sheets with your critiques will need to be returned by August 1, 2019.

Please let us know by  May 1, 2019 with your availability of serving on the Review Committee. If you have any questions, email Info@PABreastCancer.org

 

2018 Conference Workshops Announced!

Posted By on July 26th, 2018 at 2:34 pm | 0 comments.

  Learn from leading medical and wellness professionals about topics that are important to your life!

Workshop topics to include:

  • New Advances in Treatment for Women with BRCA Mutations by Dr. Susan Domchek, University of Pennsylvania
  • Advances in Breast Cancer Research and Clinical Trials by Dr. Shannon Puhalla, NSABP and UPMC
  • What it is your Recurrence Score?: Why it Matters presented by Dr. Amy Clark, University of Pennsylvania
  • Screening Update: The New American College of Radiology Recommendations presented by Dr. Alison Chetlen, Penn State Health
  • Palliative Care and How it Relates to Breast Cancer presented by Hospice of Central PA
  • Breast Reconstruction: Advances and Options presented by Dr. Brynn Wolff, UPMC Pinnacle
  • Patient Resources 101: Free Mammograms and Services through the PA Department of Health’s HealthyWoman Program presented by Siri Ready, Diane Donahue, Kathy Makara; PA Department of Health
  • Navigating your Insurance: the Bra Benefit presented by Terri Scott and Jill Robbins, The Perfect Match Boutique
  • Food for Thought: Nutrition and Breast Cancer presented by Shanna Shultz, Giant Food Stores
  • Pink Ribbon Pilates presented by Allison Zang, Absolute Pilates
  • The Benefits of Exercise During and After Treatment presented by Dr. Karen Wonders,Wright State University

Sessions are current as of 8/3/18. Additional topics are still being added so check back to our website for updates, the full schedule and workshop descriptions!

 

Warren County Survivor: “Don’t Let Cancer Define You”

Posted By on July 16th, 2018 at 2:55 pm | 0 comments.


When and how was your breast cancer survivor diagnosed?

I teach at the Warren Area High School and always have a screening mammogram before the school year begins. After my August 2015 mammogram I was called back for a follow-up and diagnosed the following month with stage 4 breast cancer. It was breast cancer that had already metastasized to my lymph nodes and liver.

Tell us about hearing a diagnosis of metastatic breast cancer.
I’m living with it and pray every day but I beat it and I try to keep on beating it. If there’s a recurrence, we’ll deal with it then. Right now I’m cancer free and hope it stays that way. I take an aromatase inhibitor daily but that’s all the treatment at this point. I’m progesterone and estrogen positive and Her-2 negative so I think that helps. I’m metastatic so that means I’m living with it.

I’m grateful for all the research that’s going on. I have a friend who passed away eleven years ago and I often think that if the research was as intense then as it is now she might still be alive.

Who supported you through your diagnosis and treatment?
Number one was my husband Ted. He’s been my rock with all I’ve been through. The whole family has been a strong support.  My daughter Megan and her husband Toby have a little daughter Avery who will be 16 months old. She was born when I was going through all this and was my real bright spot. Toby is in the Air Force stationed in Tampa. My son Hank is marrying his college sweetheart in September. He was drafted by the Minnesota Twins in 2016 after college and played two years in the minor leagues. He’s a personal trainer now working with baseball players, doing what he loves. My sister Barbie and I went through Livestrong at the local YMCA and she was my support through that. And I have my parents who are 89 and 85 years old and going strong and living just five minutes away from me. Warren is very small so all my colleagues in the town were supportive. Above all else is my faith. It’s so important.

How did you come to know about the PA Breast Cancer Coalition?
A woman who taught at our high school is now working at the Warren Public Library. She reached out to me and told me about the traveling photo exhibit, and asked if I would like to speak at the exhibit’s opening reception there at the library. I hadn’t heard of the PBCC before but now I have learned so much about it from reading the website. I love that you’re funding research and creating awareness and making sure that there is always a way for a woman to get a mammogram. Everyone should be able to get a mammogram, to get treatment, and you should be able to go to the best places.

 How you might complete this sentence: “Without the PBCC, ______”
Without the PBCC, it seems that many women would not have the chance for early detection with a yearly mammogram.

What advice would you offer to someone whose friend or family member has been diagnosed with breast cancer?
Don’t allow cancer to define them. I’m a mother, wife, grandmother, daughter, sister, friend, teacher, fighter, and a survivor. I won’t let cancer define who I am.