Archive for the ‘App’ Category

Research Grant Reviewers Needed!

Posted By on April 24th, 2019 at 9:27 am | 0 comments.

 

PA Breast Cancer Coalition (PBCC) is in need of individuals to serve this year on our panel as Scientific Research Reviewers and Consumer/Lay Reviewers.

Each Scientific Reviewer will be assigned a designated number of grants/proposals to review and will write short critiques on the following:

  • Scientific Relevance
  • Impact
  • Innovation
  • Research Strategy
  • Research Environment
  • Feasibility and Timeline
  • Budget
  • Principal Investigator and Personnel

Each Consumer/Lay Reviewer will be assigned a designated number of grants/proposals to review and will write a short critique on the following:

  • Impact

Consumer/Lay Reviewers are required to read the full application and are encouraged to comment on all criteria if you feel you have the knowledge and feel comfortable in doing so.

Each assigned reviewer will provide their critique(s) focusing on major, score driving strengths and weaknesses.

Once your willingness and availability to serve on the Review Committee is confirmed, you will be emailed a Conflict of Interest (COI) that will need to be completed and emailed back to the PBCC. An email address will be provided to you.

You will also receive the Reviewer Manual/Guidelines to review.  Please read and become familiar with the material since this is the information you will need to begin and complete your review process for the Grant/Proposal Program.

Grants/Proposals will be mailed to you around July 6, 2018. Your score sheets with your critiques will need to be returned by August 1, 2018.

Please let us know by  May 1, 2019 with your availability of serving on the Review Committee. If you have any questions, email Info@PABreastCancer.org

 

Survivor Spotlight: Nelline Talton, Allegheny county

Posted By on February 11th, 2019 at 4:15 pm | 0 comments.

HOW AND WHEN WAS YOUR BREAST CANCER FOUND?

I had my baseline mammogram when I was 28 years old after learning that my great grandmother had breast cancer. At that time, they told me I had dense breasts and the mammogram was cloudy because of my age. In September 2005 at age 44 I went for annual screening mammogram and there was a suspicious area on the film. I had additional views done and an ultrasound guided biopsy, then an MRI stereotactic biopsy. It was concluded that I had a malignant tumor and that I needed a mastectomy.

I had chemo prior to the surgery due to the size of the tumor. I’ll never forget the date of my surgery: it was on Good Friday 2006. I had a double mastectomy with reconstruction.

WHERE DID YOU FIND YOUR BEST SUPPORT?

Most of the support I had was through my church family at the Deliverance Baptist Church in Wilkinsburg, and my sister. My sister actually spent one of her birthdays with me at my chemo treatment.

I want to share one very special thing. Right before my surgery the surgeon was running behind. One of the ministers from my church, who is the bishop’s daughter, sat and sang to me until they came to take me to surgery.

HOW DID YOU LEARN ABOUT THE PBCC?

I went to a breast cancer support group at the YWCA in Pittsburgh after my first chemo treatment. The coordinator Yvonne Durham shared lots of information and a gift bag. Two weeks after that meeting I received a PBCC Friends Like Me care package. It was close to Christmas when it arrived and I thought it was a Christmas gift. A little note inside said that Yvonne had requested it for me. I cried going through everything because it made me feel special to think that such a wonderful thing could come because of having this awful disease.

YOU’VE BEEN TO THE PBCC CONFERENCE IN OCTOBER. WHAT WAS THAT LIKE FOR YOU?

My first two conferences were in 2016 and 2017. This past year I really enjoyed the opening session presentation by Dr. Hudis. He shared so much information and he’s so humble! I love that he’s still working with patients. Without the PBCC, I would not be able to continue learning about breakthroughs with treatment, research, and clinical trials. I share as much of that as I can, and I know that you’re doing it all in an effort to save lives. I’m truly thankful for the PBCC. You’re a sounding board and lasting voice for me and for other survivors.

IS THERE SOMETHING YOU WANT OTHER WOMEN TO REMEMBER?

Be aware of any changes in your breasts and don’t be afraid to voice them to your doctor. Be vigilant about having mammograms. Schedule it and show up!

 

Is Transportation To Your Medical Treatments A Challenge?

Posted By on February 11th, 2019 at 11:05 am | 0 comments.

Uber Health or LyftForHealth may be able to help! Each of these popular ride companies are partnering with healthcare facilities to arrange transportation for patients and caregivers. The hospital books the ride in advance (or the day of the appointment) and the patient is notified by text when to expect the driver. If texting is not an option, the patient will receive a confirmation call from the hospital.

The passenger does not need an Uber or Lyft account; however, the hospital must be participating in the program. Check with your doctor or hospital to see if they might consider joining UberHealth or LyftForHealth, available anywhere that Uber and Lyft have services.

More details are at www.uberhealth.com and https://lyftbusiness.com/healthcare

 

Does your treatment facility provide this service? Let us know!

 

 

2018 Conference Workshops Announced!

Posted By on July 26th, 2018 at 2:34 pm | 0 comments.

  Learn from leading medical and wellness professionals about topics that are important to your life!

Workshop topics to include:

  • New Advances in Treatment for Women with BRCA Mutations by Dr. Susan Domchek, University of Pennsylvania
  • Advances in Breast Cancer Research and Clinical Trials by Dr. Shannon Puhalla, NSABP and UPMC
  • What it is your Recurrence Score?: Why it Matters presented by Dr. Amy Clark, University of Pennsylvania
  • Screening Update: The New American College of Radiology Recommendations presented by Dr. Alison Chetlen, Penn State Health
  • Palliative Care and How it Relates to Breast Cancer presented by Hospice of Central PA
  • Breast Reconstruction: Advances and Options presented by Dr. Brynn Wolff, UPMC Pinnacle
  • Patient Resources 101: Free Mammograms and Services through the PA Department of Health’s HealthyWoman Program presented by Siri Ready, Diane Donahue, Kathy Makara; PA Department of Health
  • Navigating your Insurance: the Bra Benefit presented by Terri Scott and Jill Robbins, The Perfect Match Boutique
  • Food for Thought: Nutrition and Breast Cancer presented by Shanna Shultz, Giant Food Stores
  • Pink Ribbon Pilates presented by Allison Zang, Absolute Pilates
  • The Benefits of Exercise During and After Treatment presented by Dr. Karen Wonders,Wright State University

Sessions are current as of 8/3/18. Additional topics are still being added so check back to our website for updates, the full schedule and workshop descriptions!

 

Warren County Survivor: “Don’t Let Cancer Define You”

Posted By on July 16th, 2018 at 2:55 pm | 0 comments.


When and how was your breast cancer survivor diagnosed?

I teach at the Warren Area High School and always have a screening mammogram before the school year begins. After my August 2015 mammogram I was called back for a follow-up and diagnosed the following month with stage 4 breast cancer. It was breast cancer that had already metastasized to my lymph nodes and liver.

Tell us about hearing a diagnosis of metastatic breast cancer.
I’m living with it and pray every day but I beat it and I try to keep on beating it. If there’s a recurrence, we’ll deal with it then. Right now I’m cancer free and hope it stays that way. I take an aromatase inhibitor daily but that’s all the treatment at this point. I’m progesterone and estrogen positive and Her-2 negative so I think that helps. I’m metastatic so that means I’m living with it.

I’m grateful for all the research that’s going on. I have a friend who passed away eleven years ago and I often think that if the research was as intense then as it is now she might still be alive.

Who supported you through your diagnosis and treatment?
Number one was my husband Ted. He’s been my rock with all I’ve been through. The whole family has been a strong support.  My daughter Megan and her husband Toby have a little daughter Avery who will be 16 months old. She was born when I was going through all this and was my real bright spot. Toby is in the Air Force stationed in Tampa. My son Hank is marrying his college sweetheart in September. He was drafted by the Minnesota Twins in 2016 after college and played two years in the minor leagues. He’s a personal trainer now working with baseball players, doing what he loves. My sister Barbie and I went through Livestrong at the local YMCA and she was my support through that. And I have my parents who are 89 and 85 years old and going strong and living just five minutes away from me. Warren is very small so all my colleagues in the town were supportive. Above all else is my faith. It’s so important.

How did you come to know about the PA Breast Cancer Coalition?
A woman who taught at our high school is now working at the Warren Public Library. She reached out to me and told me about the traveling photo exhibit, and asked if I would like to speak at the exhibit’s opening reception there at the library. I hadn’t heard of the PBCC before but now I have learned so much about it from reading the website. I love that you’re funding research and creating awareness and making sure that there is always a way for a woman to get a mammogram. Everyone should be able to get a mammogram, to get treatment, and you should be able to go to the best places.

 How you might complete this sentence: “Without the PBCC, ______”
Without the PBCC, it seems that many women would not have the chance for early detection with a yearly mammogram.

What advice would you offer to someone whose friend or family member has been diagnosed with breast cancer?
Don’t allow cancer to define them. I’m a mother, wife, grandmother, daughter, sister, friend, teacher, fighter, and a survivor. I won’t let cancer define who I am.