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Survivor Stories


Ida (right), pictured here with Dolores Magro, PBCC Patient Advocate, at the 2004 Keystone Breast Cancer Conference.

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Ida Tonui
Carlisle, PA

Ida Tonui is 46 years old and a mother of two, a 28 year-old daughter and an 8 year-old son. She first visited the U.S. in 1999 when her husband was invited to the Army War College. They returned to Kenya in 2000. Last year, Ida fled her country to escape her husband’s abuse. She had a mammogram after hearing a speaker at the YWCA talk about early detection, and breast cancer was discovered.

How did you react to the diagnosis?

I was in shock and denial. No one in my family ever had breast cancer. I had a lumpectomy followed by 6 rounds of chemotherapy, then 35 radiation treatments. I will be on Tamoxifen for five years. I worried about losing my hair, but it grew back more beautiful than it was before!

Tell us about being in a support group.

My advice to all breast cancer patients is to join a support group. You see that you are not alone. You see the survivors, many who have survived a long time and you are encouraged. A support group opens the door to learning from other women’s experiences.

Twice a year our support group goes out to dinner. I went to the recent dinner out. We all wore pink ribbon pins, or hand-knitted scarves with pink ribbons. Others in the restaurant could see we were breast cancer survivors. We were laughing so hard and having such a good time. It must be good for people to see that breast cancer is not the end of laughter and not the end of life.

How has breast cancer changed you?

"The PBCC is a blessing. I will never forget the PBCC saying 'we will not rest until we find help for you'. I was so happy I cried."

I was raised in a Christian family, but I attended church as a formality and enjoyed going because I sang in the choir. When I was able to return to this country, and then received medical help and after all I’ve experienced, I learned it is God’s will and everything happened as He planned.

I am more patient. I am the 5th of 8 children, yet I was always the leader. They never made a decision without me. I wanted them to be perfect in every way. Now I listen and am more patient.

What have you learned?

This was all a blessing in disguise. If I were still in Kenya, by now I would be dead. I would not have thought about getting a mammogram. Even if I did, I wouldn’t get the medical attention I had here. A woman I knew in Kenya had breast cancer. There was a fundraiser to send her to the U.K. for treatment. She had to sell her land to help pay for it. The PBCC is a blessing. I will never forget the PBCC saying we will not rest until we find help for you. I was so happy, I cried. When I came to this country I never expected my life to become what it is and to meet the people
I have met. Breast cancer has made me see a lot of things, especially how everyone in America is so concerned and kind. Almost everyone I have met has been good to me. God has been good to me.

 


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