Archive for the ‘Pink Link’ Category

Free Breast Density Webinar Now Available Online

Posted By on March 16th, 2015 at 8:37 am | 1 comment.

The PA Breast Cancer Coalition’s latest webinar, “Breast Density: What is It and Why Does it Matter?” is now available online! Thank you to our expert presenter, Dr. Susann Schetter, Division Chief of Breast Imaging at Penn State Hershey Breast Center, who presented information on breast density notification, levels, risks and screening options March 11. Did you miss it? Click on the link below to watch a video recording of the webinar:

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Cost Concerns Over Shorter, High-dose Radiation Therapy Treatments

Posted By on March 16th, 2015 at 8:36 am | 1 comment.

radiation-therapyRecent studies suggest that shorter, high-dose radiation treatments can be just as effective as longer-range therapy regimens.  So, why aren’t more patients opting for them? According to doctors at Duke University Medical Center, that reason could be cost.

Duke’s research shows that fewer than 20 percent of patients with early invasive breast cancer who opted for breast-conserving surgery chose to receive the shorter hydrofractionated therapy instead of the more traditional therapy.  Researchers at the San Antonio Breast Cancer Symposium reported that concerns over cost could be the reason shorter, high-dose therapies aren’t catching on.  They also note that about 10 percent of patients at community facilities have access to the hydrofractionated radiation and some 15 percent of patients treated at comprehensive community cancer centers received the treatment.
You can read more about short course radiation therapy in the latest edition of the PBCC’s Frontline Newsletter here.

To read more about this study online, click here.

Saddle Up! 5th Annual Ride 4 Life Set to Raise Funds for PA Survivors

Posted By on March 16th, 2015 at 8:36 am | 0 comments.

shelly-mixThe 5th Annual MidAtlanticSpeedHorse.com‘s Ride 4 Life is here! This open barrel race to benefit the PBCC has raised over $9,500 in the past 4 years, spearheaded by breast cancer survivor and horse enthusiast Shelly Mix! Join over 160 riders April 25 in Annville, Lebanon County, PA for target barrel races, a rookie race and junior horse barrel competitions. It all gets started with exhibitions at 8:30am and the show at 11:00am. There will also be vendors, food and more!

Find out all the info, register, donate or become a sponsor on their website here.

Would you like to organize a fundraiser for the PBCC? Visit pbcc.me/hostevent or contact Kristen@PABreastCancer.org for more information.

Expensive Prescriptions? Assistance Programs Available for Families

Posted By on March 16th, 2015 at 8:36 am | 1 comment.

prescription-helpMany pharmaceutical companies offer Patient Assistance Programs for the prescription medications they manufacture. Patients who are uninsured or underinsured may qualify to receive free or discounted drugs for breast cancer treatment and other family medical needs. Needy Meds provides a user-friendly list of the companies’ assistance programs with details about how to apply.

On the Needy Meds website, search by the name of your prescription medication to see if an assistance program is offered.  Also, Pennsylvania’s prescription assistance programs for older adults, PACE, PACENET and PACE plus Medicare, offer low-cost prescription medication to qualified residents, age 65 and older. For more information, call the PA Department of Aging at 1-800-225-7223.

Dense Breast Tissue: What to Know. What to Do.

Posted By on February 16th, 2015 at 8:31 am | 1 comment.

patheadshotforplWe all have a responsibility to educate, support and care for each other. I’ve met and talked with so many women who tell me similar stories – they have dense breast tissue, didn’t know it and were diagnosed at a later, less-treatable stage. We’re working to ensure no other woman has that same story to tell.

The PBCC hopes to gather information from mammography centers where women receive their mammograms. We’ve developed a 12-question survey to learn more about what mammography centers need to notify women of their breast density. Are you a breast imaging professional? Will you help us with this email survey?

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Answers to the short survey will make a BIG difference! Gathering this information is vital as we move forward, informing and educating women about breast density. Thank you for turning advocacy into action!

Dr. Eugene Glavin, Medical Director for Women’s Imaging at Good Samaritan Health System explains why it’s important for mammography centers to share information.

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PBCC Advocacy Helps Fayette Survivor Find Support, Strength

Posted By on February 16th, 2015 at 8:29 am | 1 comment.

JaynetteSurvivorStoryforPLWell, I did a terrible thing. I went for three years without a mammogram, working, going camping, and just doing whatever I wanted to do. The doctor’s office would make an appointment for me and I’d cancel it. Then I realized I had a lump and I made an appointment and had a mammogram. I knew they’d be calling me back in, and two days later they did. I went for a diagnostic ultrasound, then a biopsy, and was diagnosed with breast cancer on July 26, 2013.

When I learned I had breast cancer I did an online search and found the PBCC. I didn’t know where else to turn and the PBCC was so helpful! I got my Friends Like Me care package within a week. There was so much good information. It gave me something to concentrate on.
I had a modified radical mastectomy, then chemo, took a month off to rest, and then I had 36 radiation treatments.
When I was on my 3rd of 20 chemo treatments, my Family Medical Leave (FMLA) ran out and I lost my job. I was trying to keep up with COBRA payments, and I think what happens is that nobody wants to talk about not being able to pay their bills. But I eventually mentioned it to my niece who lives in another state and she knew someone there who got coverage through the Breast and Cervical Cancer Prevention and Treatment Act (BCCPT). I called the PBCC to see if that was available in PA and you helped me find out how to apply. It was such a huge relief, not having to worry about how to come up with the COBRA payments!
jaynettelastchemoMy husband was such a great support. He said, “You can’t give up now. You have to keep on going.” The other biggest help I had was Luca, a yellow golden retriever. Luca is a therapy dog who comes to UPMC Magee and is owned by Sister Pat, a Catholic nun. Pets with Heart is a program of the Sisters of St. Joseph of Baden PA.  All throughout my chemo treatments, Sister Pat brought Luca in and she would sit with me. I never would have done as well without her.
One thing I want other women to know is not to be upset if they have chemo fog. If you forget things, just laugh about it. It’s healthier. Look on the bright side because there are so many people that want to help you. Unity Journey of Hope, a nonprofit organization working to fulfill wishes for adults facing illnesses, granted me a wish. I haven’t been able to ride bikes or ski or travel like I used to do because I’ve had too much pain and discomfort. But I have always wanted to eat in a 5-star restaurant and they granted me that wish!
Now I’m looking forward to going to the Pink Zone basketball game at Penn State! This would be my first time and that looks like a lot of fun!

Breast Cancer Death Rates Decline Drastically Over 20 Years

Posted By on February 16th, 2015 at 8:29 am | 1 comment.

Breast-Cancer-Survival-for-PLIn the past 20 years, breast cancer death rates have dropped dramatically.  According to the latest government statistics, breast cancer deaths decreased by 34 percent between 1990 and 2011 and experts believe that number has continued to drop over the past 4 years.  Why the decrease?

Researchers say death rates from breast cancer have declined due to better treatment, greater awareness, and more women getting mammograms.  New medicines in the past 20 years, such as targeted chemotherapy and Tamoxifen, have contributed to increasing breast cancer survival.  Today, there is an increasing trend toward individualized medicine as doctors learn more about tumors and the effectiveness of personalized medicine.  Additionally in the past 20 years, more women are becoming aware of the disease and are going to the doctors when something seems suspicious.  Many are hopeful that this downward trend will continue and even more women will survive a breast cancer diagnosis.

Click here to read the full article.

NHL Alumni to Face Off Against Breast Cancer this March

Posted By on February 16th, 2015 at 8:29 am | 1 comment.

Pucks-with-ProsCalling all ice hockey fans: Join the PA Breast Cancer Coalition for a fun-filled weekend with NHL Alumni at Pucks with Pros on March 6th and 7th! It all gets underway Friday night at Hersheypark’s Coaster Cafe with an exclusive Meet and Greet Hot Stove Party featuring dozens of former pros. Hear the alums tell their stories and bid on some one-of-a-kind silent auction items. The action continues Saturday at the Pucks with Pros Alumni Classic game at Klick Lewis Arena. Want to go?

A limited number of tickets to the Meet and Greet Hot Stove Party are available online at www.PuckswithPros.com for $30.  Tickets are also available for $40 at the door.  Snitz Creek Brewery will supply original beer selections for the event.  On Saturday, pros and their teams are set to challenge each other in a “Fantasy Tournament” at Klick Lewis Arena in Palmyra. Don’t miss it!

Pucks with Pros, organized by Jon Jehrio, has raised more than $90,000 for the PA Breast Cancer Coalition over the years.

Visit www.PuckswithPros.com for information on NHL Alumni lineup and weekend events.  Be sure to spread the word using #PuckswithPros on Twitter and Facebook. We hope to see you there!