Archive for the ‘Pink Link’ Category

VP’s Moonshot Summit Focuses on Future of Cancer Prevention, Treatment

Posted By on July 14th, 2016 at 9:25 am | 0 comments.

Moonshot Summit for PL roundedPBCC President and Founder Pat Halpin-Murphy was among doctors, patients and advocates invited to the Cancer Moonshot Summit at Fox Chase Cancer Center on June 29. The national effort spearheaded by Vice President Joe Biden aims to advance cancer research, increase patient access to treatment and to support patients across the country.

The ultimate goal of the Cancer Moonshot is to double the rate of progress toward a cure for cancer. The PA Breast Cancer Coalition was honored to be part of this historic event!

Click here to watch Vice President Joe Biden’s remarks from the summit.

Click here to watch the recording of Fox Chase’s moonshot summit.

 

Survivor Diagnosed at 40, Husband Becomes Caregiver for Second Time

Posted By on June 15th, 2016 at 9:03 am | 0 comments.

Nicole-Lee-survivor-spotlightThis month’s survivor spotlight, Nicole Lee, had a 6-month-old little boy when she went for her first mammogram. At age 40, she heard the words “you have breast cancer” and her first reaction was concern for her husband.

“Ryan cannot go through this again.”

Ryan, Nicole’s husband, lost his first wife to breast cancer. She was diagnosed when their twin sons were the exact same age as Nicole’s son Ashton – 6 months old.

Nicole Lee, Montgomery County

My life seemed perfect.  I was working as an operating room nurse at a big trauma hospital and living life to its fullest. I was single and happy with wonderful friends and family. I was having lots of fun going out, attending destination weddings, vacations, social functions; whatever was going on, I was there.  I did feel like there was just one thing missing.  I wanted to fall in love and share my life with someone. But my expectations were so high!  If someone was worthy of my heart they’d have to fulfill my long list of criteria and fit into my life. Then I met Ryan. It was the closest thing I’ve ever felt to love at first sight.  He made me laugh.  He was brilliant, witty, adventurous, kind, caring, and ambitious.

I also immediately fell in love with his two six-year old twin boys, Ethan and Brandon.  Ryan had lost his late wife to breast cancer in 2008.  She was diagnosed when she was 32 and the boys were only six months old.  She passed away only three years later.  But Ryan was in a very good place now.  He had done his grieving and had opened his heart and was ready to love again. I felt like the boys needed a mom and this was where I was meant to be in life.  I was even happier than I had ever been!  My family opened their hearts to the boys. I adopted the boys and in 2013 we got married on a beautiful beach in Cancun with 60 of our friends and family. We went about life holding nothing back.  With Ryan’s history, he did not want to miss out on anything.  It had been a tough few years for Ryan when his late wife was sick then as a single Dad.  He now had such a zest for life and it went right along with my philosophy.

Nicole Lee family

Nicole’s husband Ryan with their sons Ashton, Ethan and Brandon

After our wedding- I had started to feel like I wanted to have a baby.  Ryan was hesitant but he eventually said yes.   I think he wasn’t sure it would really happen. I wasn’t either.  But five months after our wedding I was pregnant and I was the happiest pregnant person ever to walk the earth.  I had an easy pregnancy and delivery. We had a healthy, beautiful baby boy, Ashton.  I cherished every moment with him.  I loved being his mom as well as a mom to Brandon and Ethan.  We were very lucky to have my mom come and help whenever we needed her.  She was just as in love with the baby and the boys as I was and loved to come and give me breaks. When Ashton was six months old I decided to stop breast feeding.

Since I had turned 40 a few months prior I had scheduled my first mammogram. After my mom came down to stay with me, I suddenly didn’t feel like going to the appointment.  I just didn’t want to leave the baby and figured I could wait a few more months. “Just go”, my mom said.  “I’m here so just go get it done”.  Off I went and I felt strangely excited like it was sort of a rite of passage. I was 40 years old with a baby and I felt good about where my life was.

That day would change everything.  My husband who is an Einstein radiologist and his friend and colleague, Dr. Deb Copit, head of Women’s Imaging at Einstein, greeted me, and I felt flattered she was there to welcome me and that she’d read my first mammogram. I headed to the room where the scans were then taken.  Then she told me what I never thought I’d hear.  She said I had breast cancer.  My immediate reaction was “Ryan cannot go through this again”.  I never thought this would happen to me, and this couldn’t happen to Ryan twice. I was diagnosed when our baby was six months old, the exact age that the boys were when Ryan’s late wife was diagnosed.  The similarity was eerie and unbelievable. The days after that are still blur.  I

Dr. Jennifer Simmons - Chief of Breast Surgery, Einstein Medical Center Montgomery, shares Nicole's story at a recent opening reception for the PBCC's Photo Exhibit, 67 Women 67 Counties: Facing Breast Cancer in Pennsylvania at Einstein.

Dr. Jennifer Simmons – Chief of Breast Surgery, Einstein Medical Center Montgomery, shares Nicole’s story at a recent opening reception for the PBCC’s Photo Exhibit, 67 Women 67 Counties: Facing Breast Cancer in Pennsylvania at Einstein.

met Dr. Jen Simmons and she was amazing.  We actually cried together on that day I was diagnosed.  She was there not just as a breast surgeon but as a therapist and a sounding board.  It was a very dark time and very tough for my husband. Going through this once was hard enough but twice? I just prayed I’d be ok because the boys could not lose another mom and now we had a baby too.

My husband went into “clinical mode”, and was there for every meeting.  He made sure every aspect of my treatment was smooth and timely.  I can’t say enough about the wonderful treatment I had at Einstein.  I quickly began chemotherapy.  Dr. Biermann, Michele Dooley, Barb Heinzmann and all the nurses in the oncology department were unbelievable.  They were like a family to me and as much as I dreaded the chemo, I was happy seeing those faces when I arrived.  I decided to save my hair with cold caps so my husband and the boys would not see me as looking sick.  The regimen for the cold caps was very rigorous.  My Dad with the help of Ryan facilitated the hats for me at every chemotherapy session.  I wore the caps for NINE hours each time.  It was a huge amount of physical work so a different friend each time would come to help out in addition to my Dad and Ryan.  My mom came down to stay for every chemo to take care of the kids as I was sick for a while each time. After five months of chemo my MRI showed a “complete pathologic response” meaning all the cancer was gone.  This was truly a miracle.  I still was faced with a double mastectomy and reconstruction but the good news gave me extra strength.  It was a very tough time but I got through it with the help of my family. I don’t know how people do it without support.  My family and friends were there for me beyond my expectations.  Other survivors, acquaintances and friends I didn’t even know I had came out of nowhere.  My husband, my parents and my husband’s sister were there for every chemotherapy and surgery and I really didn’t worry about a thing except getting myself through it.  It was difficult to put our wonderful life on hold and have to be faced with battling cancer.  It’s been almost a year now for me and I’m doing great.  You never know what will happen in life and I never take anything for granted. I pray that I will live a long, healthy life. My husband and I are back to our normal life again.  I know this was a big bump in the road but looking at things now, my life is still perfect.

Are you a PA breast cancer researcher looking for funding?

Posted By on April 4th, 2016 at 9:56 am | 0 comments.

Applications are now being accepted for the PA Breast Cancer Coalition’s Breast Cancer Research Grants Initiative. Each year, the PBCC awards outstanding Pennsylvania researchers who are working to find a cure for breast cancer.

Click here for more information. 

Mammography Centers: We Need YOU!

Posted By on April 4th, 2016 at 9:51 am | 0 comments.

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Take our 1-question survey and join the 240+ mammography centers who have already shared information with the PBCC!

Do you work at a mammography center? We’d love for you to take 2 minutes to fill out our short 3D mammography survey. The PBCC has gathered information from 240 of more than 300 facilities offering mammograms across the state. Will you be next?

Help us to ensure our information is accurate when it comes to 3D mammograms in PA. Click here to take the survey now.

Tickets Now on Sale for 2nd Annual Toasting a Cure at the Vineyard Event

Posted By on April 4th, 2016 at 9:48 am | 0 comments.

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Bucks Valley Winery and Vineyard to host wine tastings, live music for PBCC

Spring has sprung and with it comes fun outdoor fundraisers for the PBCC! Save the Date for the Second Annual “Toasting a Cure at the Vineyard,” held at Bucks Valley Winery and Vineyards in Newport, PA on Saturday, June 11th. Join us for a delightful evening from 4-8pm on the patio of this Perry County winery and enjoy live music, delicious hors’d oeuvres, a silent auction and of course wine tastings!

Tickets are only $35 for this fabulous event, so grab your friends and join us to toast a cure at the vineyard this June! Find out all of the details and order tickets here.

Einstein to Host “67 Women, 67 Counties” Exhibit Featuring Faces of Breast Cancer in PA

Posted By on April 4th, 2016 at 9:44 am | 0 comments.

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Join Montgomery County Survivors and the PA Breast Cancer Coalition on May 17, for our exhibit opening at Einstein Medical Center Montgomery. Become inspired through stories and learn the importance for women to get annual screenings. Admission to the reception is free of charge. Want to go?

This exhibit includes a kickoff reception beginning at 5pm with a full program to follow, showcasing local breast cancer survivors sharing their stories as they faced the disease. The exhibit will be open through Monday, May 30. Don’t miss out on the opportunity to see it!

For more information or to RSVP to the event, click here!

3D Mammogram and Ultrasound: $50,000 Research Grant Winner Dr. Wendie Berg Examines Breast Cancer Screenings

Posted By on April 4th, 2016 at 9:41 am | 0 comments.

Study focused on effective screening techniques for women with dense tissue

Which is better at detecting breast cancer in women with dense breasts – an ultrasound or 3D mammogram? Dr. Wendie Berg, MD, PhD, FACR of the University of Pittsburgh School of Medicine and Magee-Womens Hospital of UPMC aims to answer that question with her PBCC-funded research.

The PA Breast Cancer Coalition awarded a $50,000 grant to Dr. Berg this week to continue her studies of the two breast cancer screenings. Dr. Berg is specifically interested in screenings for women with dense breasts. Dense breast tissue can hide cancer on a regular 2D mammogram, and often, supplemental screenings are recommended. It is a personal subject for Dr. Berg; her mother was diagnosed when she was in high school and Dr. Berg found her own breast cancer diagnosis through additional testing.

Dr. Berg and her team hope to deter3-30 check presmine if one of the options (ultrasound or 3D mammogram) are best in detecting breast cancer. On October 5, 2015, the PBCC awarded Dr. Berg an extraordinary opportunity grant of $50,000 to jump-start the process. Her study was also chosen to receive a 2016 grant through the PBCC Breast Cancer Research Grants Initiative – a fund comprised of taxpayer donations and private funding from anonymous donors and foundations.

Watch the video below to learn more about Dr. Berg’s breast cancer screening research.

Every Pennsylvania taxpayer has the option to donate their state income tax refund directly to our Research Initiative on Line 32. By choosing Code A, you join our fight to end breast cancer. Didn’t get a refund? Click here to donate now. Our goal in 2016 is to establish an endowment fund for research that enables us to continue our important mission of finding a cure for breast cancer now… so our daughters won’t have to.

Surprise! More Pennsylvanians Receiving Unexpected Medical Bills

Posted By on March 15th, 2016 at 9:40 am | 0 comments.

woman-with-bills-for-pl2Medical bills can already be a hassle, but what do you do when they arrive out of the blue? Here’s how it happens: When a patient receives care at a facility that is considered in-network by her insurer, but a doctor who treated them at that facility is considered out-of-network, the patient is responsible for an extra fee. It happens even if the patient had no way of knowing the doctor is out of network. These “surprise” medical bills can be a financial burden on families, causing many personal bankruptcies. The PA Insurance Commission will be proposing legislation to protect health care consumers in our state.  We will keep you informed on this important issue!

Click here to see the proposed solution.