Archive for the ‘Patient Advocacy’ Category

Free YMCA Program Bridges Gap Between Treatment, Recovery

Posted By on November 13th, 2013 at 9:50 am | 34 comments.

Livestrong at YMCALivestrong offers FREE 12-week, small group fitness programs at various YMCAs around the country aimed at helping cancer survivors in the transitional period between completion of treatment and the shift to feeling physically and emotionally strong enough to return to a “new normal.” Instructors work to fit the program to each participant’s individual needs.

In Pennsylvania, the program is offered at the following four Y’s:

  • Indian Valley Family YMCA in Harleysville (215-723-3569)
  • Community YMCA of Eastern Delaware County in Secane (610-544-1080 ext. 220)
  • YMCA of York and York County, Southern Branch at Shrewsbury (717-235-0446)
  • YMCA of York and York County, York Branch (717-843-7884)

Finding a Clinical Trial Near You

Posted By on September 16th, 2013 at 8:55 am | 0 comments.

Breast Cancer Patient Clinical TrialCancer clinical trials provide patients at all stages of cancer with the most cutting-edge medical treatment and the highest level of care. The nonprofit organization Coalition of Cancer Cooperative Groups offers services and education about clinical trials for healthcare professionals, patients, caregivers and advocates.  Interested in finding a clinical trial near you?
The Coalition of Cancer Cooperative Groups Web site has a screening questionnaire to complete and find relevant clinical trials near you, or you can call toll-free 1-877-227-8451 to talk with a cancer clinical trial specialist.

Yoga for your Healing Provides Hope, Strength in Recovery

Posted By on August 15th, 2013 at 8:22 am | 28 comments.

Yoga For Your HealingFrom surviving to thriving.  That is the goal of a new Yoga DVD produced by PA native Kate Lubenesky.  Kate has developed several instructional videos for women and men with cancer in memory of her mother, Priscilla, who lost her long battle with breast cancer in 2010. Over the past few years, Kate and her family have developed the Yoga for Your Healing series to motivate and strengthen survivors as they go through treatment and beyond.  The latest, “Thriving Yoga,” teaches yoga on all levels, regardless of experience or muscle strength.  Kate has generously donated hundreds of DVDs for the PA Breast Cancer Coalition to use in our Friends Like Me care packages for recently diagnosed women.

You can also learn more information about Kate’s family and Yoga for Your Healing online:   http://www.yogaforyourhealing.com.Yoga For Your Healing DVD Cover

 

“Cleaning for a Reason” Making a Difference in Manheim

Posted By on July 15th, 2013 at 8:20 am | 0 comments.

The GarmansCleaning is difficult, even when healthy. Add in breast cancer and it makes for an extremely difficult chore.  For PA survivors like Lori Wolgemuth, undergoing treatment for cancer means that she was often too tired to accomplish even basic cleaning tasks that we take for granted, like dusting and vacuuming.

Lori was a busy mom to three boys, and then her life completely changed when she was diagnosed with cancer. Lori said, “In one moment, my life changed.”

Donna Garman, of Garman’s Cleaning in Manheim, Lancaster County, saw an opportunity to donate her time and skills through a nonprofit called Cleaning for a Reason. Donna heard about the charity through a job coach, who also happened to be the founder of the organization.

Donna’s mother is a breast cancer survivor. Donna can relate to the pain and hardship the disease can bring on a family. In fact, Donna’s experience with her mom’s cancer, along with knowing friends and other relatives who have battled cancer, propelled her toward volunteering with this charity.

This break from cleaning chores allows Lori to focus on her family and recovery. Plus, she feels good knowing the house is being maintained for her family’s sake.

Over the past two years, Garman’s Cleaning, under Donna’s leadership, has helped four local families with a family member who is battling cancer.

 

GoodWishes Offering Free Head Wraps for Breast Cancer Patients

Posted By on May 13th, 2013 at 8:51 am | 24 comments.

good wishesThe mission of GoodWishes™ is simple: to provide one beautiful wrap or scarf free of charge to anyone experiencing hair loss from cancer treatments. The organization sees it as one small way to ease the journey and provide a bit of comfort.

The program has sent out 6,474 head wraps so far — across the U.S. and to 10 other countries — each with a card signed by the entire staff. After starting with silk, they introduced models in cotton, velvet, and performance fabric for athletes.

You can place an order for yourself or for someone else, and you have the opportunity to select a preferred pattern. Order form is online at http://www.goodwishesscarves.org/

Patient Advocacy: Cleaning for a Reason

Posted By on December 17th, 2012 at 8:00 am | 50 comments.

If you or someone you know is undergoing cancer treatment, check out Cleaning for a Reason. This national non-profit organization partners with professional maid services to provide professional house cleanings to help women undergoing cancer treatment. It allows you to save your energy for fighting back against cancer. Visit www.cleaningforareason.org to apply for this free service.

Medical Article: Quitting Tobacco After a Cancer Diagnosis

Posted By on November 15th, 2012 at 9:00 am | 45 comments.

New resources are available for those with cancer and their caregivers on quitting tobacco use. These resources are available free of charge from the American Society of Clinical Oncology. Dr. Graham Warren provides a podcast and a Q & A article on the benefits of quitting after a cancer diagnosis. A booklet for healthcare providers is also available, offering tips on how to incorporate tobacco cessation into their practice.

PBCC President and Founder Pat Halpin-Murphy responds to breakthrough breast cancer study

Posted By on September 24th, 2012 at 2:38 pm | 31 comments.

Researchers have unveiled what they believe is a hallmark study for breast cancer patients and the doctors who treat them. Their findings, published Sunday in the journal Nature and the New York Times, are expected to pave the way for new treatment options in the coming years.

The project, funded by a larger federal grant, focused on a genetic analysis of breast cancer, which kills more than 12,000 women in Pennsylvania each year.  The scientists monitored the tumors of 825 breast cancer patients in the US. As a result, they found four distinctive types of breast cancer. Within those types, researchers say they identified at least 40 genetic alterations that might be attacked by drugs. Many of those drugs are already being developed for other types of cancers with the same mutations.

Researchers and patient advocates stress that it could still take years of research and clinical trials to incorporate the insights into new treatments. They say a wide variety of drugs will most likely need to be created and tailored to individual tumor types.

“This is a tremendous new development that will alter the way women with breast cancer are treated,” said PBCC President and Founder Pat Halpin-Murphy. “Of course, this is the first step, but I believe it’s the first step toward a cure for many types of breast cancer.”

The four types identified in the study are basal-like cancers, luminal A and B cancers, and HER2-enriched cancers. From here, doctors and researchers are hoping clinical trials and dozens of separate drug studies will help to develop new breakthroughs in treatment from the findings. Dr. Elizabeth Stark, a breast cancer patient and biochemist at Pfizer, says she knows it will take time, but she’s hopeful the research will lead to a cure. “In 10 years, it will be different,” she said. “I know I will be here in 10 years.”

To read the complete New York Times Article, visit this link: NY Times Article

To read the complete journal Nature study, visit this link: journal Nature study

The PA Breast Cancer Coalition represents, supports and serves breast cancer survivors and their families in Pennsylvania through educational programming, legislative advocacy and breast cancer research grants. The PBCC is a statewide non-profit organization dedicated to finding a cure now…so our daughters won’t have to. For more information, please call 800-377-8828 or visit www.PABreastCancer.org.