Archive for the ‘Patient Advocacy’ Category

Free Beach Vacations Available for Breast Cancer Survivors

Posted By on August 15th, 2014 at 8:48 am | 0 comments.

littlepinkhousesfamilyforwebLittle Pink Houses of Hope provides FREE week-long vacations for breast cancer patients and their families. Each beach retreat is designed to help families relax, reconnect, and rejuvenate. Families accepted are responsible for the cost of travel to and from the vacation site; all other aspects of the retreat are covered by Little Pink Houses of Hope.

Applications are now open for fall vacations in North Carolina, California, South Carolina and Florida. Each family is housed in their own beach housing which has a refrigerator stocked with all of their breakfast and drink needs.  Common meals are held for lunch and dinner, allowing families to meet and enjoy getting to know other families on the same journey.  During the week, a schedule of daily activities is put together based on local community donations.  In the past, activities have included, kayaking, hang gliding, stand up paddle boarding, golf, jewelry making classes, massage, fishing, sailing, concerts, carnivals, etc.
For more information on Little Pink Houses of Hope, visit the website: http://www.littlepink.org/

Cancer Card Xchange Offers Free “Gifts” to Survivors

Posted By on July 11th, 2014 at 12:50 pm | 0 comments.

CancerCardXchangeforPLThe Cancer Card Xchange is a nonprofit organization that collects donated gift cards and distributes them as one-time gifts to cancer patients and their families, simply to brighten their day.

The organization was founded when a survivor read that about $41 billion worth of gift cards had gone unclaimed since 2005, and she remembered that one of the brightest moments during her initial treatment for cancer was a night out with her husband — compliments of a gift card given to them by friends. Cancer Card Xchange has given almost 1,000 people close to $100,000 worth of gift cards. For more information, or to request a gift card donation for a cancer patient, send an email to info@cancercardxchange.org. Receipt of the gift cards may take up to a month.

For more information, visit www.cancercardxchange.org

FREE Summer Camp Open to PA Kids Affected by Cancer

Posted By on June 16th, 2014 at 8:45 am | 0 comments.

Camp-Kesem-picCamp Kesem, a summer camp for kids with a parent who has (or has had) cancer, is now accepting applications! The one-week sleep away camps are a chance for children ages 6-16 to have a fun-filled week and just be kids. Everything at Camp Kesem focuses on the goal of giving campers the best week of their lives, while providing the extra support and attention they need.

Camp Kesem empowers college student leaders nationwide to create free, FUN summer camps for children affected by a parent’s cancer.  There are two locations offered here in Pennsylvania:

Camp Kesem Central PA – Fort Washington
http://campkesem.org/centralpa/about-our-camp

Camp Kesem at UPenn – Philadelphia area
http://campkesem.org/upenn

Learn more about the Camp Kesem experience in the video below:
https://www.youtube.com/watch?v=3cEDBQLhdSY#t=29

The “A Day at Camp” link provides an overview of a typical day your child might expect:
http://campkesem.org/parents-campers/a-day-at-camp

Targeted Breast Cancer Therapy Study Calling for Participants

Posted By on May 15th, 2014 at 10:14 am | 0 comments.

Are you currently undergoing breast cancer treatment? A new study is looking for survivors who are taking either Afinitor breast-cancer-study-for-PL Tykerb. Researchers want to learn more about the patient experience including daily nutrition and any side effects they may be noticing. Want to learn more?

GlaxoSmithKline’s Focus on the Patient team is conducting this study of oncology patients.  To be eligible, you must be:

•    Currently taking one of these medications – Afinitor or Tykerb – as part of treatment regimen for at least the past two months

•    Available to participate in on-on-one interviews on one of the following dates:  May 19, 20 or 21 to be conducted in Collegeville, PA or via Skype or telephone.

•    Willing to discuss daily nutrition and any side effects experienced as a result of this treatment as well as its effects on quality of life

Researchers are hoping to gain insight into any changes for patients related to the treatment.  If you are interested in volunteering for this study, please contact Kay Warner at kay.j.warner@gsk.com or call the PBCC at 800-377-8828.

Financial Assistance Available for Younger Cancer Survivors

Posted By on May 15th, 2014 at 10:14 am | 0 comments.

Help-for-young-survivors-for-PLIf you are under the age of 39 and have completed your treatment for breast cancer, you may qualify for a grant from Surviving And Moving Forward: the SAMFund for Young Adult Survivors of Cancer. The SAMFund provides financial assistance to young adults (ages 21-39) to empower survivors to achieve their educational, professional and personal goals. Grants cover a wide range of needs including medical bills, rent, utilities, gym memberships and transportation costs.
The two-part process begins in June with Part 1 of the application. Approved applicants submit Part 2 in November. Instructions for grant application are at http://www.thesamfund.org/grants/

FREE eBook: “Breast Cancer Basics”

Posted By on May 6th, 2014 at 10:00 am | 0 comments.

Breast-Cancer-Basics-PicThe PA Breast Cancer Coalition has compiled a “Breast Cancer Basics” book with helpful information on types of breast cancer, stages, treatments, nutrition and more.  It’s everything you need to know including tips for talking with your doctor and what to do if you don’t have insurance.  Download your copy, free of charge here.

If you know someone who has recently been diagnosed with breast cancer, request a free Friends Like Me care package for them from the PBCC.  Fill out the online form by clicking here and a box full of resources and small gifts will be on its way.

Pregnant and Diagnosed with Breast Cancer? Help is Available.

Posted By on April 15th, 2014 at 8:32 am | 0 comments.

pregnant-woman-pic-for-PLFor some women, the happiest time in their lives is complicated by the scariest times in their lives when pregnant women are diagnosed with cancer. There is help available.

Dr. Elyce Cardonick, a Maternal Fetal Medicine physician at Cooper University Health Care maintains a cancer and childbirth registry/data base of all pregnant women diagnosed with cancer and with each patient’s permission, reviews their cancer treatment and pregnancy outcomes. What is unique about this data base, The Cancer and Pregnancy Registry, is that the children are not only followed up until birth, but on an ongoing yearly basis. Pregnant women diagnosed with cancer find the registry helpful in learning how many other pregnant women were diagnosed and treated for the same cancer during pregnancy. Patient data is kept confidential. It is a valuable contribution to the oncological and obstetrical knowledge base for pregnant women with cancer.
If you would be interested in contributing your information to the data base to advance the knowledge about cancer and pregnancy, please contact Dr. Cardonick directly. She can send you information and a consent form explaining the data base. Your health, and the health of your child, will be followed periodically.

You may reach Dr. Cardonick and find out the details about participating in The Cancer and Pregnancy Registry at www.cancerandpregnancy.com or by calling her at 1-877-635-4499 (toll free) or at 1-856-342-2491. A message may also be left on her private voicemail at 1-856-757-7876.

Breast Cancer Researchers Need Your Help. Take Action Today!

Posted By on April 15th, 2014 at 8:32 am | 0 comments.

clinical-trials-pic-for-PLFederal funding cuts could soon shutter access to clinical trials for thousands of cancer patients across the country.  The National Cancer Institute has decided to end funding for federal-funded clinical trials in the community setting.  How can YOU help?

According to the American Society of Clinical Oncology, researchers will either be forced to shut down existing clinical trials or cancel planned new trials.  Unless the National Cancer Institute continues to fund current clinical trials and future trials, potential breakthroughs in cancer treatment may be halted.  Here’s where YOU come in.  We urge anyone passionate about finding a cure for breast cancer to contact their U.S. Senators and representatives in U.S. Congress to alert them of this important and urgent issue.  Tell them to demand continued funding for cancer clinical trials from the National Cancer Institute. Thank you for taking action with us!

To find your U.S. Representative, click here.

To contact U.S. Senator Bob Casey, click here.
To contact U.S. Senator Pat Toomey, click here.