Archive for the ‘News’ Category

Pregnant and Diagnosed with Breast Cancer? Help is Available.

Posted By on April 15th, 2014 at 8:32 am | 0 comments.

pregnant-woman-pic-for-PLFor some women, the happiest time in their lives is complicated by the scariest times in their lives when pregnant women are diagnosed with cancer. There is help available.

Dr. Elyce Cardonick, a Maternal Fetal Medicine physician at Cooper University Health Care maintains a cancer and childbirth registry/data base of all pregnant women diagnosed with cancer and with each patient’s permission, reviews their cancer treatment and pregnancy outcomes. What is unique about this data base, The Cancer and Pregnancy Registry, is that the children are not only followed up until birth, but on an ongoing yearly basis. Pregnant women diagnosed with cancer find the registry helpful in learning how many other pregnant women were diagnosed and treated for the same cancer during pregnancy. Patient data is kept confidential. It is a valuable contribution to the oncological and obstetrical knowledge base for pregnant women with cancer.
If you would be interested in contributing your information to the data base to advance the knowledge about cancer and pregnancy, please contact Dr. Cardonick directly. She can send you information and a consent form explaining the data base. Your health, and the health of your child, will be followed periodically.

You may reach Dr. Cardonick and find out the details about participating in The Cancer and Pregnancy Registry at www.cancerandpregnancy.com or by calling her at 1-877-635-4499 (toll free) or at 1-856-342-2491. A message may also be left on her private voicemail at 1-856-757-7876.

Breast Cancer Researchers Need Your Help. Take Action Today!

Posted By on April 15th, 2014 at 8:32 am | 0 comments.

clinical-trials-pic-for-PLFederal funding cuts could soon shutter access to clinical trials for thousands of cancer patients across the country.  The National Cancer Institute has decided to end funding for federal-funded clinical trials in the community setting.  How can YOU help?

According to the American Society of Clinical Oncology, researchers will either be forced to shut down existing clinical trials or cancel planned new trials.  Unless the National Cancer Institute continues to fund current clinical trials and future trials, potential breakthroughs in cancer treatment may be halted.  Here’s where YOU come in.  We urge anyone passionate about finding a cure for breast cancer to contact their U.S. Senators and representatives in U.S. Congress to alert them of this important and urgent issue.  Tell them to demand continued funding for cancer clinical trials from the National Cancer Institute. Thank you for taking action with us!

To find your U.S. Representative, click here.

To contact U.S. Senator Bob Casey, click here.
To contact U.S. Senator Pat Toomey, click here.

Volunteer Profile: Thank You Wayne G. Harvey!

Posted By on April 11th, 2014 at 9:01 am | 0 comments.

WaynepicFor the last seven or eight years I’ve volunteered at the PBCC Conference, working the merchandising counter but mostly handing out totebags.  I was also part of a group who recorded a Peace/Christmas CD whose proceeds benefited the Coalition.

 How did you first get involved volunteering with us?
A very good friend of mine works for the coalition.  After she explained to me all the good the Coalition does in the state of Pennsylvania, I felt privileged to help in whatever way I could, whether it be volunteering or spreading the word about this amazing bunch of women whose fight it is to raise awareness and advocate on behalf of the women in this state.

What would you say is the best part of volunteering with PBCC?
I always feel a humbling sense of accomplishment when I watch the PBCC staff work to make putting on this big conference look so easy.  Most people don’t understand all the effort that goes in to presenting the conference, and how many long and sleepless hours these brave and unyielding women put in to make it happen.  Knowing that even in some small way I help to make that process easier makes me feel good about myself.

Any advice for someone who is thinking about volunteering but hasn’t yet taken the plunge to do so?
Do it!  It’s such a small sacrifice of time and energy, but you feel like you’re part of something so much larger, and become part of an effort that means so much to so many people.  Every day we take for granted organizations like the PBCC.  And though there are so many organizations that involve breast cancer, there are none that spend the time advocating for women’s rights and health issues like the Coalition.  That is what’s truly important in the state of our union.  You can raise all the money you want for cancer research, and, yes, that’s a very important thing, but you still need to address the day-to-day hurdles that women face while dealing with this dreaded illness.  That’s the strength of the Coalition, and that’s their purpose.

Volunteer Profile: Thank You Alice Sanders!

Posted By on April 10th, 2014 at 8:34 am | 0 comments.

Alice SandersI have served on the board of the PBCC for 20 yrs. as the VP, South Central Region which covers Lancaster, Harrisburg, York, Carlisle, Williamsburg and surrounding areas. In this capacity, I have participated as a strong advocate for women diagnosed with breast cancer.  I have personally walked beside women as they journeyed through the diagnosis, treatment and recovery stages of breast cancer. I am one of the original participants in the “67 Women, 67 Counties” photo exhibit. I have provided a voice to support the mission of the PBCC of “Finding a Cure for Breast Cancer” so our daughters won’t have to. 

How did you first get involved volunteering with us?

My first involvement with the PBCC began in 1994 (a year after my diagnosis with breast cancer in May 1993) when I assisted the first executive director with the PBCC Mother’s Day Mammogram Program (a program no longer needed because the PBCC secured legislation for the Healthy Woman Program). I joined the board in October 1994.

What would you say is the best part of volunteering with PBCC?

The best part of volunteering with the PBCC is the broad outreach to women in the State of PA.  I am so proud of the work that we do to advance research and to secure legislation to fight the disease of breast cancer.

Any advice for someone who is thinking about volunteering but hasn’t yet taken the plunge to do so?

Anyone looking for meaningful volunteer work should consider joining the PBCC.  We need more grass root partners to assist us with fund raising to advance research.  We need community voices throughout the State of PA to help us push forward legislation to empower women with up-to-date treatments. The PBCC is unique because we are a “state-wide” breast cancer group representing the 67 counties in PA. 

Any volunteering memory/short story you’d like to share?

My most memorable story that I’ve shared over the past 20 years is: While lying in my hospital bed at Lancaster General Hospital in June 1993, the night before my breast cancer surgery, I saw on WGAL-TV 8 our President, Pat Halpin-Murphy, and the founders of the PBCC exclaiming with fierce determination that they were organizing to find a cure for breast cancer.  The visual image of their fight to advance research for breast cancer was God’s way of speaking to me to help me find a purpose for my diagnosis.  I have used my affliction as a platform to help other women.  

Volunteer Profile: Thank You Dr. Jill Herr!

Posted By on April 8th, 2014 at 8:23 am | 0 comments.

Jill HerrI’ve been a volunteer since last summer (2013), and I help put together the Friends Like Me care packages. I also represented the organization at a health fair at Millersville University in October 2013.

How did you first get involved volunteering with us?

After being diagnosed with breast cancer in November 2012, I was looking up information on the internet and came across the PABCC website. I was impressed by the work the PABCC is doing and wanted to help if possible.

What would you say is the best part of volunteering with PBCC?

The staff members are great. Also, knowing that the care packages have really been appreciated by the recipients is quite rewarding.

Any advice for someone who is thinking about volunteering but hasn’t yet taken the plunge to do so?

Try it out. I’ve been impressed by how many people have benefitted from the support that the PABCC provides, and there are so many ways to help out. I’ve had a lot of fun helping out.

Any volunteering memory/short story you’d like to share?

A couple of months ago I put together a care package for a young survivor. She wrote back and said that it meant so much for her and was just what she needed. It really feels great to know that I could help someone in that way.

Want to volunteer with the PA Breast Cancer Coalition?  Click here.

Volunteer Profile: Thank You Karen Byers!

Posted By on April 7th, 2014 at 8:28 am | 0 comments.

Karen CroppedHow long have you been a PA Breast Cancer Coalition (PBCC) volunteer?

I have been a volunteer with the PBCC since its inception.   The first thing I did was collect signatures on petitions requesting increased funding for breast cancer research.  These petitions were then taken to Washington (there was a big march to the White House).  Several members of our support group (the ABC’S) handed out material at the first Conference.  From that time forward, my husband and I filled the first tote bags that were distributed at the Conference; thereafter, the ABC’S graduated from my family room to a local store front (at a mall owned by Crown America, a former sponsor of PBCC), and then, for the past 12 years, at our church (First United Church of Christ in Carlisle).

From the first conference until the present, the ABC’S have “manned” the registration tables each year.   In addition, I have participated in the preparation of several photo exhibits and worked at health fairs distributing PBCC information/literature and free handouts.  I have also participated in several PBCC promotional videos over the past 20 years.

How did you first get involved volunteering with us?

I was invited to attend a meeting at WGAL-TV8 in Lancaster for a new breast cancer organization – my first introduction to the PBCC.  From that day on, I was hooked on becoming a volunteer and doing whatever I could to help promote breast cancer awareness.

What would you say is the best part of volunteering with PBCC?

The wonderful people I have had an opportunity to meet:  The incredible PBCC staff (small, but mighty) and volunteers, the wonderful women who attend the Conference each year, the one-on-one conversations with women and men whom I have met at the various health fairs and exhibits.  Being an advocate for breast cancer awareness has afforded me the opportunity to meet so many wonderful women who continue to inspire me.

The very best part of volunteering is that my daughter and granddaughter have begun volunteering at Conference – having the opportunity to share my passion and to see that they share the same passion as I for breast cancer advocacy.

PBCC2010_0100Any advice for someone who is thinking about volunteering but hasn’t yet taken the plunge to do so?

I volunteer, thinking I can be of help to someone else; however, I feel I am the one coming away learning from everyone else.  Volunteering with the PBCC is truly a wonderful experience that makes you feel as though you are really doing something to promote breast cancer awareness.  As much as is written regarding breast cancer issues, etc., it is amazing how many women there are who are not informed or know about the programs offered through the PBCC and how fortunate are the women of this Commonwealth, where breast cancer is concerned (free mammography, free treatment, the funds donated for research, etc.).  WE  MUST continue to make women aware of these programs and provide opportunities for involvement and advocacy.

Any volunteering memory/short story you’d like to share?

Many years ago, I was with a group of volunteers who visited legislators in Harrisburg, knocking on their office doors and introduced ourselves.  Not being a public personality, I was terrified; however, I always think if I can help just one woman in her journey with breast cancer, anything I can do is well worth doing whatever needs to be accomplished.  After the first introduction, I relaxed and found it exhilarating as I stated my cause.  I have always felt that my volunteering with the PBCC has given me wings to soar to unknown heights and do whatever is necessary to help find a cure…so our daughters won’t have to.

Want to volunteer with the PA Breast Cancer Coalition?  Click here.

Time to Quit? Young Smokers Linked to Increased Breast Cancer Risk

Posted By on March 14th, 2014 at 8:23 am | 0 comments.

Woman-Smoking-photoA study recently published in the journal Cancer conducted by researchers at the Fred Hutchinson Cancer Research Center, found that younger women who have smoked a pack a day for the last 10 years have a 60% higher risk of developing estrogen-positive breast cancer.

In contrast, the study did not find a link between smoking and triple-negative breast cancer, which is a type of breast cancer that does not have estrogen and progesterone receptors.  The study included nearly 1,000 cancer-free women, as well as 778 people with estrogen receptor-positive breast cancer and 182 people with triple-negative breast cancer between ages 20 and 44 who were diagnosed between 2004 and 2010.

Read an article on the complete study here.

Breast Cancer Mortality Rate Shows Troubling Racial Divide

Posted By on March 14th, 2014 at 8:22 am | 0 comments.

African-American-Woman-StudyNew research shows that African-American women are, on average, 40 times more likely to lose their battle with breast cancer than white women.  The startling study examined findings compiled by experts at the Sinai Urban Health Institute in Chicago and the Avon Foundation for Women.  The reason?

Researchers analyzed data from black women in 41 cities across the country with breast cancer. Researchers say the difference can be explained by lower access to health screening, lower-quality screening, less access to treatment and low-quality treatment for African-American women in urban environments.

The study also found that death rates for both black and white women with breast cancer have declined over the past 20 years, but death rates among white women saw a much more dramatic decrease over that same time period.

Read the complete article here.